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Living Donation in the News / Al Roth's Address on Global Kidney Matching
« Last post by Clark on December 02, 2019, 02:06:39 PM »
https://www.youtube.com/watch?v=VzFskvciP0w&feature=emb_logo
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[/size]Keynote: Big Data and Global Kidney Matching Chain
Luohan Academy


Alvin Roth, 2012 Nobel Laureate in Economics and member of the Luohan Academy academic Committee, delivered a speech centered on the topic of worldwide data connectivity, cloud computing, and AI-enabled matching system to identify kidney donors correctly. Kidney disease is a global issue and also one of the top ten fatal diseases. Professor Roth said that if there were a data pool with enough patients and donors, then transplantation would be completed in a new way – indirect donation.
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Living Donation Forum / Re: Gout
« Last post by Fr Pat on December 02, 2019, 12:54:25 AM »
I'm just bouncing this thread up to the top, as people on the FaceBook pages have been asking about gout in kidney donors.
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https://onlinelibrary.wiley.com/doi/abs/10.1111/ajt.15541?campaign=woletoc
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[/size]PERSONAL VIEWPOINT[/size]Impact of the OPTN transmissible diseases policy and US PHS increased risk donor guidelines on living donor candidates


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Rebecca Hays 
Elisa J. Gordon 
Michael G. Ison 
Dianne LaPointe Rudow

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First published:
24 July 2019
https://doi.org/10.1111/ajt.15541

[/size]Abstract
[/size]Donor‐derived human immunodeficiency virus (HIV), hepatitis C virus (HCV), and hepatitis B virus (HBV) transmissions in transplantation have led to policies mandating assessment of donor behavioral history, and disclosure of donor increased risk (IR) status to recipients. Organ Procurement Transplantation Network (OPTN) policy safeguards were promulgated in the context of deceased donation, with its narrow time window for organ utilization and uncertainty about donor history. These policies have been applied to living donation without substantive data on risk of disease transmission in living donor transplantation. Unlike for deceased donors, the OPTN does not collect data on living donor IR status. Given the feasibility of thorough living donor evaluation via already‐mandated lab tests and clinical assessments, living donor IR assessment and associated disclosures may have limited benefit in improving recipient informed consent. Applying the current IR policy to living donors may also introduce unintended consequences to donors and recipients, causing donors psychological harm, delays in donation to avoid IR status disclosure, and potential withdrawal from donation. We suggest strategies that reduce risk of harm to donor candidates while maintaining policy compliance, and review additional approaches for evaluating risk of disease transmission in living donor candidates. Data on the risk of disease transmission by living donors are needed to inform policy modification.
14
Living Donation Forum / Arizona donors
« Last post by Fr Pat on November 26, 2019, 12:21:26 AM »
Donors in Arizona may be interested to know that in preparation for next summer's U.S. (National) Transplant Games in New Jersey, "Team Arizona" will hold a one-day "Arizona Transplant Games" on December 7, 2019 in Chandler, Arizona. There will be athletic events (easy or hard) for donors and recipients (old and young) plus lots of socializing. Info and registration at www.TransplantTeamAZ.org/Arizona Games
15
Living Donation Forum / Re: Charities
« Last post by Michael on November 24, 2019, 08:30:02 AM »
Happy Sunday!

I don't have any specific charities to recommend, but you could visit a couple of the online charity guides, enter something like "organ donation," and see what comes up that's interesting to you:

https://www.charitynavigator.org/

https://www.guidestar.org/
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Living Donation Forum / Charities
« Last post by 1KidneysEnuff on November 23, 2019, 12:26:18 PM »
Happy Saturday,

I'm looking for recommendations of good charities related to organ transplantation, and especially living donor transplantation. I appreciate any suggestions or stories you can share.

 Thanks!
17
Living Donation Forum / Re: Frustrated
« Last post by 1KidneysEnuff on October 22, 2019, 01:04:17 PM »
Good luck with working on your own health. In the meantime, you and your husband can try to find another living donor. It's becoming more and more common to look online with social media campaigns. I first learned about the need for a kidney donor from an appeal the patient's wife made in an online prayer group. But they had swamped their neighborhood with yard signs, car magnets, etc. in addition to the persistent outreach online.
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Living Donation Forum / Re: Heart Disease
« Last post by 1KidneysEnuff on October 22, 2019, 01:00:06 PM »
Do you have any limits on exercise with the stents? I don't know enough about stuff like that to give any advice, but I do know that part of the evaluation as a donor is to predict whether your entire system will be able to take the strain of surgery.

Good luck and thank you for trying to be a donor!
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Living Donation Forum / Re: Frustrated
« Last post by Orchidlady on October 21, 2019, 03:03:37 PM »
I had a similar situation in that I wanted to donate to my husband but I was too heavy. They did part of the testing, but would not do the balance of it until I lost weight. It took me nine months to lose all the weight I needed to lose to be acceptable. I had to start eating better, watched portion sizes and joined a gym for the first time in my life. My blood pressure was not bad, but it did improve with the weight loss as did other numbers.
As Fr Pat has said, you are still relatively young and they don't want the donation to give you major problems on into the future. And actually, high blood pressure is the second leading cause of kidney failure.
You may want to talk with your own physician to see what they say about the blood pressure and weight loss as they may be able to provide some guidance and help.
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Living Donation Forum / Re: Frustrated
« Last post by Fr Pat on October 21, 2019, 03:36:45 AM »
By the way, these days more people check in at the FaceBook page of Living Donors on Line, and also Living Kidney Donors Support Group on FaceBook. If you would like to post there as well you would probably get more responses and experiences.
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