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21
Living Donation Forum / Re: Frustrated
« Last post by Fr Pat on October 20, 2019, 11:39:36 PM »
     it seems that kidney donors have a higher-than-average risk of developing high blood pressure in the years following donation. So the hospital has to be sure that your blood pressure is good beforehand, or otherwise donation might be too risky for you. They wamt to be as confident as possible that both the donor and the recipient will have good long-term health afterwards.
22
Living Donation Forum / Frustrated
« Last post by jhonyguy04 on October 20, 2019, 09:16:07 PM »
Hello I am new here. Just needed to vent out somewhere about my frustration. My husband has recently progressed to stage 4 CKD and I never had second thoughts about donating my kidney to save him. He didn’t ask I said of course I would do it. I was excited for my evaluation and they told me I have to lose weight and it turns out I have hypertension. I started eating better and lost 10 lbs, but now my weight list has platued. And they told me because I am 33 my hypertension has to be cured. And I am trying my best to cure it with diet and exercise. But I am so depressed about this. I wanted to be ready for my husband to avoid dialysis on him.
23
Living Donation Forum / Re: Heart Disease
« Last post by sherri on October 13, 2019, 11:49:27 AM »
The evaluation is to make sure that you are healthy enough to donate a kidney, your remaining kidney can compensate and that any of your health conditions will not be made worse due to having a lone kidney. I would suggest you have a talk with your cardiologist. There may be medications that you need to take that need that additional kidney function you would be giving away. what happens if you need to have another cardiac catheterization, can you your one kidney handle the nephrotoxic dye. There are some studies that those with one kidney may be more at risk high blood pressure and protein in the urine. These are not issues someone with a heart condition would want to subject themselves to. it would be terrible to create a situation where a donor would go onto need a kidney .It happens but hopefully not due to something that could have been prevented in the evaluation process.

I hope your center does a thorough job in screening for your sake and for the overall kidney donor program. Accepting donors who are at risk jeopardizes everyone. There is more than one way to help a patient in end stage renal failure; donating a kidney is just one. The recipient  and donor needs help with transportation to appointments, maybe monetary loss of wages while they are out with surgery,  help with paying for medications if they have high co pays(recipient), babysitting, errands, cleaning.

Best of luck with your evaluation.

Sherri
24
Living Donation Forum / Re: Heart Disease
« Last post by Fr Pat on October 08, 2019, 08:00:27 PM »
I myself did not have any heart problem. You might want to also post your question at the face-book page of Living Donors on Line as more donors check in there these days.
25
Living Donation Forum / Heart Disease
« Last post by wishusluck on October 08, 2019, 02:02:16 PM »
Hi all - just posted my Health Questionnaire and I'm worried they will refuse me as I have stents in my heart.  Anyone on here with heart disease ?
26
Living Donation Forum / Re: Kidney removal and erectile dysfunction
« Last post by vikinath on October 04, 2019, 08:02:40 AM »
27
Living Donation Forum / Re: Getting Spouse Support
« Last post by 1KidneysEnuff on October 02, 2019, 07:07:11 PM »
I think that most donors resolve the "what if" issue with that the reality is here and now. What happens in the future is out of our hands. If gd forbid your child needs a kidney in the future you may not even be healthy enough (or alive) to give that gift. So should you hold onto an organ that may be needed versus one that is needed now?

I had an answer like that for a friend who counseled me against donating at first. He reminded me that my kids might one day need organs. I pointed out that none of them was showing any signs of illness and someone "hoarding blessings" wasn't the way I wanted to view myself.

If I worry now about how I might need "it" (for any type of "it") in some uncertain future, then I'd never be able to give so much as a dollar to someone in need, since someday I might need it.

Her concerns are real and probably feel even more real & immediate to her. Bad Things do happen in people's lives. Are you comfortable facing that future none of us would want, one where you have a bad donation experience, or one where she or your child does need a kidney later? Maybe if you show that you are taking her concern seriously by accepting these are real possibilities and talking through it with her, that will be a chance for her to talk through your concerns for your family member with you. I'm not saying you haven't talked it through like that, just wondering if she feels heard. A big part of her future hopes and dreams involves a healthy you.

Best of luck to you both.
28
Living Donation Forum / Re: Getting Spouse Support
« Last post by sherri on October 02, 2019, 06:20:56 PM »
I actually prefer this forum as I find it more personal and thoughtful. However the world is changing so I go on facebook as well.

Many potential donors have been in this situation where they find their significant other is less than supportive. I think that most donors resolve the "what if" issue with that the reality is here and now. What happens in the future is out of our hands. If gd forbid your child needs a kidney in the future you may not even be healthy enough (or alive) to give that gift. So should you hold onto an organ that may be needed versus one that is needed now? I have 4 children and at the time, I also thought what would I do if my child needed a kidney? I concluded that I hoped that someone would do for my child what I am doing.

Not sure if you have a therapist, clergy or professional that could help sort this out between you and your fiancee. Is she willing to come to a doctor appointment or perhaps an educational seminar at the transplant center?  I do think it is hard to go forward with this if she is not on board. Because if you do run into a complication will she be able to support you? not an easy position to be in.

Good luck with this dilemma.

Sherri
29
Living Donation Forum / Re: Breastfeeding through donation???
« Last post by sherri on October 02, 2019, 06:13:24 PM »
Jessie,

you mentioned that neither of the baby's parents are a blood match for her.If she is a biological child then one of the parents has to be a blood match (or perhaps maybe one of the parents is not the biological parent?). If they are not a match but healthy enough to donate they may be able to enter into a paired exchange. This is where the donor of one recipient donates to another recipient and their donor donates to your recipient. you can google kidney paired exchange. Also children receive priority for donation so once she does reach her height and weight requirements, a deceased donation may not take as long.

you may also want to speak with your own doctor about kidney donation so that they may weigh in on potential issues.

Best of luck to you and your family.

Sherri
30
Living Donation Forum / Re: Breastfeeding through donation???
« Last post by Zara on September 30, 2019, 08:24:38 AM »
Hello Jessiebooth,
I hope everything went well.
I’m about to be a liver donor for my sister. I also breastfeed. Would you mind sharing your experience?
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