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Living Donation Forum / Re: Altruistic/Non-Directed Donors
« Last post by AshleyH2887 on March 20, 2019, 04:19:15 PM »
Thanks for the information Fr. Pat and thank you for being a donor :)
Hi All - Rhoda Schneider here... living donor 2000... going strong. I am helping a wonderful man in Sun City Arizona to FIND a living donor. He and his wife have started a great campaign. They currently have the opportunity to do two workshops, one in Happy Trails, and one in Sun City Grand, about kidney failure and living donation.[/b]]As part of the program we would love to have a living donor present to share their experience and the impact it has made on their life.

I have been working with them on the presentation. I ( currently in Florida ) have visited them. Charlie is 77 and very fit and active. The "Gist" of the campaign is that HEALTHY, SENIOR CITIZENS CAN DONATE, SAVE A LIFE AND MAINTAIN THEIR ACTIVE LIFE STYLE  -

The first Program is March 29th.. Please respond ASAP if you/ or if you know of any donors in the area who might want be available to help.
Thank yuo
Living Donation Forum / Re: Altruistic/Non-Directed Donors
« Last post by Fr Pat on March 18, 2019, 02:07:46 AM »
I donated a kidney non-directed back in 2002. My story is in the "experiences" section of this site. There are other non-directed donors here, and many more who only check in at the FaceBook page of "Living Donors on Line" or the page of "Living Kidney Donor Support Group."
     Fr. Pat
Living Donation Forum / Altruistic/Non-Directed Donors
« Last post by AshleyH2887 on March 17, 2019, 04:34:47 PM »
Hi Everyone,

I love this site and being apart of it, it is so great connecting with other donors and hearing their stories along with any problems any of us have encountered.

I donated in 2014, non-directed in Ohio. I am curious if anyone else on Living Donors is a non-directed donor? I am trying to connect with other non-directed donors but I am having a trouble finding many.
Would love to hear from some :)

Living Donation Forum / Re: testicular swelling
« Last post by Fr Pat on March 13, 2019, 11:25:43 PM »
     I did not have testicle pain after kidney donation surgery (nor was I warned about the possibility) but I now know that it is recognized in the medical literature as a known and documented risk. So every male potential donor should be warned about the possibility ahead of time. May I suggest that you also post at the FaceBook page of Living Donors on Line, as these days many more people check in there, and this problem has sometimes been discussed there.
       Fr. Pat
I donated a kidney in Oct of 2018 2 weeks after surgery I had a right side testicle with varicocele and hydrococele.  I was told in all pre op consultations that only the vein, artery, and ureter would be compromised,  never once did anyone exam a testicle, or speak of testicular involvement or mention cutting my gonadal vein.  I am now 6 months post op still experiencing painful testicle, painful sex, and swelling,  my right testicle is 3 times bigger than the right, and being told to wear a jock strap I guess for the rest of my life and on my last Doctor visit was that I would most likely have to have it removed to stop the pain and swelling or learn to live with it.  I am mad as hell and seeking lawsuit at this time.  I was never informed of this and I had I of been I would have never agreed to transplant.  Its an outrage. 
Living Donation Forum / testicular swelling
« Last post by jamorris67 on March 13, 2019, 10:36:34 PM »
I am mad as hell.  I donated a right side kidney in Oct of 2018.  2 weeks after surgery my testicle was 3 times bigger on the rt than on the left.  I learned that my right gonadal vein was cut on purpose and knowingly by the doctor.  I found that many others like me were never informed that this would happen.  Never at any point did anyone bring up the gonadal vein or any involvement with other organs.  I was told that the vein and artery and ureter would only be cut and the kidney removed.  I was then told to get off my high horse when i confronted my surgeon about it.  Was told that he performs the surgery this way.  Well, I made a decision to donate made on partial truths.  I have now read many cases where men just like me were not told and up to 10 years post op with painful swollen testicle and painful sex.  As I type this 6 months post op, I am in pain and with a hydrococele, and variococele of the testicle.  I was told that I would be fully recovered after 6 weeks yet i am 6 months post op and have now been told the only way to eliminate this pain and swelling it to have the testicle removed.  I am seeking lawsuit at this time but have been told by two lawyers that it would be hard to fight my case and most lawyers would most likely not take the case.  I am outraged and mad as hell,  I wish someone would take the SOB surgeon out and castrate him like he has me, then tell him to come off his high horse. 
Living Donation Forum / Re: Conflicted About Donation
« Last post by kidney123 on February 26, 2019, 04:44:28 PM »
Yes I also used the results from the transplant center :)

The nephrologist wanted an ultrasound of the renal arteries, so it was just that and a check up but hadn't hit the 2k deductible yet unfortunately. Hit it after those appointments though so all set for the rest of the year :)
Living Donation Forum / Re: Conflicted About Donation
« Last post by sherri on February 25, 2019, 07:25:53 PM »
I also saw an independent nephrologist but used the results of my testing at the transplant center. I was very lucky, my insurance covered that visit and all my yearly visits to my nephrologist over the past 11 years. It gets coded as solitary kidney and so far i have never been denied coverage.

Best of luck.

Living Donation Forum / Re: Conflicted About Donation
« Last post by kidney123 on February 24, 2019, 08:35:29 PM »
Hi Sherri,

The cost of testing was related to the independent nephrologist that I saw, which included a renal artery scan. Everything at the testing center (all required testing for consideration as a donor including the CT scan) was covered by the recipient's insurance. The center was in fact incredibly helpful with billing.

Thank you very much for your reply. I appreciate your support and perspective.
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