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Author Topic: The Independent Living Donor Advocate: A Guidance Document From the AST  (Read 2688 times)

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Offline Clark

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http://onlinelibrary.wiley.com/doi/10.1111/ajt.13001/abstract

The Independent Living Donor Advocate: A Guidance Document From the American Society of Transplantation's Living Donor Community of Practice (AST LDCOP)

R. E. Hays1,*, D. LaPointe Rudow2, M. A. Dew3,4,5, S. J. Taler6, H. Spicer7 andD. A. Mandelbrot8
DOI: 10.1111/ajt.13001
American Journal of Transplantation
Volume 15, Issue 2, pages 518–525, February 2015

Abstract

  The independent living donor advocate (ILDA) serves a mandated and supportive role in the care of the living organ donor, yet qualifications and role requirements are not clearly defined. Guidance comes from Centers for Medicare and Medicaid Services (CMS) Conditions for Transplant Center Participation and interpretive guidelines, Organ Procurement and Transplantation Network (OPTN) Policy and CMS and OPTN site surveys, yet interpretation of regulations varies. Herein, the AST Living Donor Community of Practice (LDCOP) offers seven recommendations to clarify and optimize the ILDA role:

(a) the ILDA must have a certain skill set rather than a specific profession,
(b) the ILDA must be educated and demonstrate competence in core knowledge components,
(c) the ILDA's primary role is to assess components of informed consent,
(d) centers must develop a transparent system to define ILDA independence,
(e) the ILDA should have a reporting structure outside the transplant center,
(f) the ILDA's role should be integrated throughout the donor care continuum,
(g) the ILDA role should include a narrow “veto power.”

  We address controversies in ILDA implementation, and offer pathways to maximize benefits and minimize limitations of approaches that may each meet regulatory requirements but confer different practice benefits. We propose a research agenda to explore the impact of the ILDA.
Unrelated directed kidney donor in 2003, recipient and I both well.
620 time blood and platelet donor since 1976 and still giving!
Elected to the OPTN/UNOS Boards of Directors & Executive, Kidney Transplantation, and Ad Hoc Public Solicitation of Organ Donors Committees, 2005-2011
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