Living Donors Online Message Board

Living Donation Discussion and News => Living Donation Forum => Topic started by: Clark on June 27, 2011, 01:49:09 PM

Title: My last OPTN/UNOS Board meeting?
Post by: Clark on June 27, 2011, 01:49:09 PM

Any problems, suggestions, questions?  Do tell!  I fly to Richmond tomorrow for the annual meetings of the OPTN and UNOS.  This marks three years since I was elected by OPTN and UNOS members to represent the general public, and living donors among the general public, at the national policy level.  It has been educational, humbling, frustrating, and rewarding at turns and all too often, all at once.  Once again, I've reviewed the reams of background material distributed in advance.  Once again, I hope dignity and respect will characterize informed debate of how best to serve the needs of potential recipients, recipients, donor family members, living donor candidates, and living donors.  "Patients" doesn't seem to cover us all, somehow, leaving out one or more groups.

So, what's on your mind?  Let me know!  I'm your representative for 48 more hours!

Title: Re: My last OPTN/UNOS Board meeting?
Post by: sherri on June 27, 2011, 02:20:25 PM

John,

Thank you so much for all the wonderful work you do on behalf of living donors.

The most important advancement I'd like to see for living donors is the establishment of a living donor registry, standardization of protocols, and transparency between hospitals so that we can learn from each other.

I hope that whoever takes your place will be able to continue to advocate for living donors.

All the best,

Sherri

Title: Re: My last OPTN/UNOS Board meeting?
Post by: stevewin@windstream.net on July 20, 2011, 10:18:40 AM

i am late in seeing this. i agree with sherri on her requests.  steve

Title: Re: My last OPTN/UNOS Board meeting?
Post by: Aries7 on July 24, 2011, 12:56:17 PM

I am also very late in seeing this, but I also agree with Sherri and Steve. Sherri summed it up beautifully. Thank you for all you have done.

Linda

Title: Re: My last OPTN/UNOS Board meeting?
Post by: PhilHoover on July 26, 2011, 07:05:21 AM

A stronger push for LIVING KIDNEY DONORS......and much, much better information....