Living Donors Online Message Board

Living Donation Discussion and News => Living Donation Forum => Topic started by: Karol on November 14, 2012, 02:44:37 AM

Title: Testing for out of state donor
Post by: Karol on November 14, 2012, 02:44:37 AM
Questions for any of you who donated to someone in another state.
How was your first blood test handled? Were you asked to go to a local lab?
Thanks,
Karol
Title: Re: Testing for out of state donor
Post by: Jewels on November 14, 2012, 09:45:49 AM
I live in Seattle and donated in Detroit.  The transplant center sent me a package with the lab orders, vials for the blood and all the supplies to ship it back fed-ex to them.  They also included instructions on how to bill them directly.  It was quite easy and I had the results that I was an initial match about 10 days later.  I did all my testing locally and did not meet the transplant team, except for phone calls, until 5 days before surgery when I flew to Detroit.

Happy to answer any long distance donation questions!
Julie
Title: Re: Testing for out of state donor
Post by: Karol on November 14, 2012, 12:46:56 PM
Thank you Julie.  :)
Title: Re: Testing for out of state donor
Post by: elephant on November 14, 2012, 01:13:30 PM
Dear Karol,

My recipient was not out of state, but our transplant center was.   They overnighted a package with everything needed to complete the first test.  I had the blood drawn at our local hospital and they returned it for me the next day.
Title: Re: Testing for out of state donor
Post by: sherri on November 14, 2012, 02:54:57 PM
Karol,

I also did my blood draws out of state from where my recipient was initially evaluated.They send the kit, very self explanatory, with a return label for Fed Ex. I actually had someone at work draw it for me, spin it and then I packaged and sent it. But as others said they can give payment information and scrip for all the blood work and the blood lab can bill the center.

Good luck to you and Jenna,

Sherri

Title: Re: Testing for out of state donor
Post by: Karol on November 15, 2012, 05:48:59 AM
Thanks.
Title: Re: Testing for out of state donor
Post by: donor99 on November 15, 2012, 08:49:38 AM
I have worked with many out of state donors and if they are a match the center can get a grant from the living donor assistance fund that will pay for transportation, lodging and meals for the work up and return for surgery.. I've never had a donor denied. Its a great program.
Pat
Title: Re: Testing for out of state donor
Post by: Karol on November 15, 2012, 02:31:13 PM
I believe that the living donor assistance fund is based on the income of the recipient, so we would not qualify.
Jenna spoke with the living donor coordinator. She said they tell donors that are out of state to go get the labs done (these are general labs to check on health of person) and have them bill the donor BUT DO NOT PAY IT. The bill is to be sent by the donor to Jenna's hospital and they will pay it. - But it occurred to me that some labs require payment at the time of service and this may be the donor's dilemma. Coordinator said to have the donor call her and she will help find a way to get it done.
This hospital doesn't do a crossmatch right away because Jenna has such high antibodies that she is unlikely to match anyone, but with desensitization and/or a swap she may get a transplant from one of these donors.
Title: Re: Testing for out of state donor
Post by: donor99 on November 15, 2012, 07:13:43 PM
I used to think the same thing, but unless the recipient is a millionaire. I've gotten grants for donors without a problem its worth a try. I had a recipient that made 175,000 a year and the donor made 75,000 and I got a grant. Its woth a try.
Title: Re: Testing for out of state donor
Post by: Karol on November 16, 2012, 03:44:47 PM
Thanks. Jenna doesn't have a donor yet so we are just trying to get a potential donor through the initial labs, without cost to her.
I looked at the NATIONAL LIVING DONOR ASSISTANCE CENTER and there's an eligibility screening tool which may come in handy later. http://www.livingdonorassistance.org/documents/Eligibility%20Screening%20Tool_2012.pdf
Title: Re: Testing for out of state donor
Post by: Rob_h on November 16, 2012, 05:08:39 PM
Hi Karlo,

Thats great news.  I donated out of state (RI, I live in NH). The RI Hospital had me do some lab testing here in NH (and paid for it). Then some was done in RI and some in NH over quite a while. best wishes, Rob
Title: Re: Testing for out of state donor
Post by: mintx on November 18, 2012, 09:30:08 PM
I will be donating in MI and I am in TX.  I did not incur any costs until I went to meet with the team in Detroit.  At that point it was a flight, hotel etc.  I did have a bit of a challenge with the billing initially however, eventually we got it sorted out with the coordinator and the labs in TX.
Title: Re: Testing for out of state donor
Post by: 140jmr on November 30, 2012, 06:52:50 PM
I'm also in the process of donating at an out of state hospital.  They have overnighted everything to me through FedEx.  I just take the package to my local lab and have my blood drawn.  They also did this for all my urine testing.  I just got all my results today and passed everything! They told me that I do now have to go there to meet the surgeon and have a chest x-ray.  It has been a very easy process so far.  Good Luck
Title: Re: Testing for out of state donor
Post by: tjhurley on December 02, 2012, 02:35:54 PM
When I took the mailed lab package to my doctor's lab tech, she said she needed orders to draw the blood.  The transplant center had not included orders for the draw. My doctor wasn't there so it was a bit of a delay to get orders faxed.

The second time the tech on a duty at the lab was a friend and she just did the blood draw without orders.  But she did point out that they should be sending orders with the kits. I would imagine this could vary from state to state.  Janet
Title: Re: Testing for out of state donor
Post by: Karol on December 05, 2012, 03:27:58 AM
Thanks for the replies. I let this person know to contact the transplant hospital but have heard nothing since then.
Title: Re: Testing for out of state donor
Post by: sherri on December 05, 2012, 01:08:01 PM
Karol,

I can only imagine the stress and anxiety related to finding a donor for Jenna. As a parent I'm sure you wish you could save Jenna but that isn't always possible. You know the intricacies of this system, and some people do decide after speaking with the transplant center, their own physicians and family that they do not want to continue. So maybe this person decided to opt out or if they have not contacted the transplant center yet because they are still thinking about the ramifications. Most centers encourage people to test first and think later, which IMHO is a little backward. The hospital and recipient want to identify possible donors and then present the donor with the medical out in order to satisfy the no coercion clause. However, in the interest of protecting the donor, one should really decide if they want to do this before finding out they are a match. It may also be in the best interest of the recipient and not to get one's hopes up too high to have found a donor but then find out they opted out. May be harder to swallow when you know there is a match but not accessible to you.

Good wishes as Jenna and your family face the next stage in her disease. I wish her the best health possible while waiting for another transplant. Hopefully "the one" is out there and you will find them soon.

Sherri
Title: Re: Testing for out of state donor
Post by: Karol on December 05, 2012, 02:37:32 PM
Thanks Sherri. I am alway cautiously optimistic yet the roller coaster of emotions does get to us sometimes.
You're right, there could be any number of reasons why a donor doesn't follow through, and in some cases we may never know why.
This transplant center does a whole work up and eval before any matching is done, as Jenna's high antibodies makes a match less likely, but a swap more likely.
I have faith that this will work out. Thank you for your support!  :)
Title: Re: Testing for out of state donor
Post by: Pam on December 07, 2012, 09:51:24 AM
 I live in Maryland and donated in New York. All of the lab work was done in NY, however I was able to do a couple of the follow up labs here in Maryland. Doesn't hurt to ask, I did.

All of the other bigger test they do most likely require them to be done at the hospital where the surgery will take place.

Pam