Living Donors Online Message Board

Living Donation Discussion and News => Living Donation Forum => Topic started by: lawphi on June 21, 2011, 08:11:01 AM

Title: Living the life of luxury from Marlburg.
Post by: lawphi on June 21, 2011, 08:11:01 AM
Donation went really well. Slept most of the day and am very peaceful. Hard to type with an IV.

Pain is not awful, mostly muscular. JH has heat packs to put on your body. Going to try walking soon.
Title: Re: Living the life of luxury from Marlburg.
Post by: ohtobeahayes on June 21, 2011, 08:46:48 AM
YAY! Congratulations!!!!!!!!!!!!!  Keep us updated! Good luck on your walk...maybe you've walked by now.  Good work! Your awesome body is doing so much work right now. Incredible! Way to go!
Nicki
Title: Re: Living the life of luxury from Marlburg.
Post by: sherri on June 21, 2011, 09:07:26 AM
Welcome to the club! You did it! So happy that everything worked out. Now just be good to yourself and enjoy Marburg. Would you like a visitor this afternoon?

Sherri
Title: Re: Living the life of luxury from Marlburg.
Post by: jstx on June 21, 2011, 10:05:42 AM
YEAH!  So glad things went well and you're doing good.  Marburg is nice, isn't it?!  Enjoy the menu, the service, etc.  You'll have to let me know if you have Christie or Dan for your nurse.  I think Christie is off duty right now but she was my main day nurse.  Dan was my night nurse.  They took good care of me and helped me to have a nice stay.  If you see them, tell them Jocelyn says hi!   ;D

If you're already feeling pretty good, when you get up and get walking you'll feel great.  At first it is painful and slow going, but it gets better.  And you get to see a nice view of the "old" hospital building that is so beautiful from the doors at the end of the hall.

P.S. The Italian Ice was great!  I kept ordering the mango one!
Title: Re: Living the life of luxury from Marlburg.
Post by: Christine Robinson on June 21, 2011, 12:32:36 PM
Congratulations to you and your recipient!

Best of luck in the healing process.  Please keep an eye on your WHOLE self as you move along in your recovery and let your docs or coordinators know if you notice anything strange.

I hate to sound like a broken record here, but my biggest (only) challenge post-donation was a hormonal shift that put me in a depressive funk within a few weeks.  I've had to take meds ever since, but I wouldn't undo the donation for that reason.  My point, sometimes things happen, so be aware and take good care of yourself.

And congratulations, again.  Prepare to do a lot of sleeping over the next few weeks.  (That was THE BEST.  The only time in my life I've ever been able to nap during the day.  Exquisite!)

Christine
Title: Re: Living the life of luxury from Marburg.
Post by: lawphi on June 21, 2011, 04:17:46 PM
I walked to the gift shop and back. The soreness is setting in and I can feel where they took the kidney out. I have snacked, read, slept and walked.



Visitors are always welcome.
Title: Re: Living the life of luxury from Marlburg.
Post by: Orchidlady on June 21, 2011, 05:05:08 PM
Congratulations! Take it easy and enjoy a well earned recovery!
Title: Re: Living the life of luxury from Marlburg.
Post by: jstx on June 21, 2011, 06:00:26 PM
You walked to the gift shop by the main entrance?  I'm impressed.  I walked halfway down the hall on the day after surgery.  Got up and walked a few times that day but always short little jaunts.  Take it easy and try not to overdue.  Sounds like you are doing well.  I'm so happy to hear that.  Keep us posted.  We're praying for a full recovery for you!
Title: Re: Living the life of luxury from Marlburg.
Post by: Fr Pat on June 21, 2011, 06:58:52 PM
Congratulations to you both!
   Fr. Pat
Title: Re: Living the life of luxury from Marlburg.
Post by: Karol on June 21, 2011, 08:34:51 PM
 :) Yay! Good to hear from you! Congrats!
Title: Re: Living the life of luxury from Marlburg.
Post by: Aries7 on June 21, 2011, 10:25:59 PM
Welcome to the club! I am so glad to hear that you are doing so well. Congratulations to you and your recipient!

Linda
Title: Re: Living the life of luxury from Marlburg.
Post by: lawphi on June 23, 2011, 09:42:11 PM
Busted out today. It was very nice being in Marburg compared to a normal floor. We are staying in Fells Point until Tuesday.

Took a shower today at the hotel. That felt wonderful. I discovered a lead under my chest. I have random tape marks that I will have to work on in the shower.

I expected a lot more in terms of pain.  The naps are great.   My arms hurt more from heparin shots than my main incision. I also weigh eight pounds more in fluids that my kidney will work out.
Title: Re: Living the life of luxury from Marlburg.
Post by: jstx on June 23, 2011, 10:15:42 PM
YEAH!  Been wondering how you were doing today.  Congrats on getting out....the tape stuff is crazy.  I've still got some that I'm having to work on in the shower.  Feels like I'm rubbing skin off with it.  Did you get your drain removed?  I had to go home with it and that was a pain to carry around and empty twice a day...icky!  Not to mention the removal of it.  I did not like that...it was much longer than I was expecting.

I was about to write you to tell you you could go visit my recipient.  He was put back in the hospital because some of his levels were too high when they did his bloodwork yesterday.  :( They are trying to determine if his body is attempting to reject the kidney or if they just need to alter his meds.  I am praying it is just the meds and not a rejection.  We are waiting to hear the results of the double biopsy they did on him and poor "little lefty" today.   :'(

So glad to hear things are going well for you.
Title: Re: Living the life of luxury from Marlburg.
Post by: Scott337 on June 23, 2011, 10:32:14 PM
Congratulations to you and your recipient - You ARE someone's hero!  Welcome to the one kidney club. Please take care of yourself and don't push too hard.  Rest, but exercise.  Thanks for your selfless act of giving your recipient the gift of life.

Love, prayers and best wishes for a speedy and excellent recovery. 


Scott 8)
Title: My advice...
Post by: PhilHoover on June 24, 2011, 05:36:58 AM
Follow all of the post-surgical instructions TO THE LETTER...

Take naps, drink LOTS Of water...and take those stool softeners....your very best friend.
Title: Re: Living the life of luxury from Marlburg.
Post by: lawphi on June 24, 2011, 09:41:43 PM
I actually did not have a drain after the operation.  My belly button now has a bruise. 

Four days post operation, my discomfort is largely gas based and my bowels are beginning to return to normal. My appetite is small and certain strange foods are very appealing, like avocados and scallops.

I walked a very easy half a mile today and took a good nap. 
Title: Re: Living the life of luxury from Marlburg.
Post by: Fr Pat on June 25, 2011, 01:44:49 AM
     Enjoy your avocados and scallops! After donation I greatly enjoyed anchovie pizza (and craved little else). I don't think I have even looked at an anchovy pizza since, but at the time they were delicious!
         Fr. Pat
Title: Re: Living the life of luxury from Marlburg.
Post by: Orchidlady on June 25, 2011, 09:15:07 AM
Sounds like things are progressing for you!  I love avocados so don't think your craving is strange at all!
Title: Re: Living the life of luxury from Marlburg.
Post by: Scott337 on June 25, 2011, 10:23:23 PM
Both the walking and the nap are great for you.  Don't over do it, but do keep lightly increasing your activity.  I'm not much on Avocados but PASS ME THE SCALLOPS! :P
Title: Re: Living the life of luxury from Marlburg.
Post by: lawphi on June 28, 2011, 09:22:29 AM
I had a follow up yesterday and my creatinine has already reached .9, which puts me at 80% function. 
Title: Re: Living the life of luxury from Marlburg.
Post by: jstx on June 28, 2011, 10:06:49 AM
That's incredible!  I'm very happy for you but a bit jealous if I must be honest!!    :D  I had my follow up last week and my creatinine was at 1.14.  My doctor said it is high but is what we expect at this point after surgery.  Am waiting to hear from Sharon at Hopkins to see what she thinks.  My doc wants to retest it in 3-4 weeks.  So I'm drinking lots of water and waiting for Righty to wake up and realize she's a loner now and needs to get to work....yes I call them Righty and Lefty cause I'm not at all creative and can't think of anything cooler to name them!   8)

Congratulations on everything!  I know you had some apprehension at the end when things were getting a bit crazy but you made it!  And your husband, as well as at least one other person, has a new lease on life!  Have a safe trip home....I think it is today that you fly back.  You did great!!   ;D

P.S. Can you tell I'm having fun with the emoticons today?!
Title: Re: Living the life of luxury from Marlburg.
Post by: lawphi on July 05, 2011, 10:45:33 PM
Hope things have settled down for you Jocelyn.
Title: Re: Living the life of luxury from Marlburg.
Post by: jstx on July 06, 2011, 07:46:02 PM
Sharon said 1.1 is perfect and it can't get any better than that!  I want to prove her wrong (and for this I wouldn't be rounding 1.14 down to 1.1 but I'm anal....).  Things are going well.  Today is one month since surgery and my recipient is feeling great!  He went back to work late last week.  I go back in a week and a half.  I'm trying to take it easy and remind myself not to overdue things.  I usually take a nap but am trying to get out and do more to prepare myself for work pretty soon.  Can't believe you went back after 8 days!  Did you get in to see the doctor today?  If so, what was decided?  Hoping you're feel better and the pain goes away soon.
Title: Re: Living the life of luxury from Marlburg.
Post by: lawphi on July 07, 2011, 07:46:20 PM
Good to hear! 

My labs are good. My ob thinks it is nerve regrowth causing the sensation.
Title: Re: Living the life of luxury from Marlburg.
Post by: jstx on July 08, 2011, 04:16:08 PM
And wouldn't you know it, but I'm having pain at and around my belly button today (my main incision is at the bikini area like a c-section incision but I do have an incision at my belly button which was used for the tools, etc).  I can't tell if it is because I picked something up yesterday (it was under 10 lbs) and I twisted wrong or if it is just the muscles healing.  It hurts when I push on my belly or reach for something (I know, don't push or reach! :)).  Am hoping with rest it will quit hurting.