Living Donors Online Message Board
Living Donation Discussion and News => Living Donation Forum => Topic started by: Michael on April 15, 2011, 09:04:42 AM
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We had a bunch of LDO folks sign up for the bone marrow registry recently (including yours truly), so I thought you might be interested in this article on the odds of actually matching someone:
http://www.bethematchblog.org/2011/04/what-are-your-chances-of-donating-to-a-patient/
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My husband and I (and my adult children) have been members of the National Bone Marrow Donor Society. We tested about 12 years ago in our community when someone was looking for a donor. My husband has been contacted twice indicating that he was a match for a potential recipient. The first time was, ironically, exactly a year after my kidney donation surgery. He answered health questions and sent in some medical forms etc then heard back 3 weeks later that the potential recipient passed away. Recently, he was contacted again that he was a match. Went through the same questions etc and has never heard back. He tried to call, no one returned any phone calls. It seems like they really aren't that interested in following up with their potential donors. I know health professionals are busy, but a phone call or email just letting someone know if the recipient is unable at this time to receive the donation, or the donor did not match sufficiently would be appreciated. You kind of just wonder what is happening and if this system really is reliable. Has anyone else ever been contacted?
Sherri
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I was contacted a few months ago, and went for a work-up.
I signed up on the registry about 15 years ago, for an unrelated matter with a co-workers son.
Just heard back that I was released...
I heard the odds are 1 in 10,000, but in the last few years the bone marrow registry is now somewhat "global".
If you do get the call to donate, you could be donating to someone in Germany...or wherever...currently there are 42 countries sharing profiles.