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Living Donation Discussion and News => Living Donation in the News => Topic started by: Clark on January 24, 2023, 02:06:37 PM
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https://onlinelibrary.wiley.com/doi/abs/10.1111/ctr.14908 (https://onlinelibrary.wiley.com/doi/abs/10.1111/ctr.14908)
Factors enabling transplant program participation in the scientific registry of transplant recipients (srtr) living donor collective: a national survey
Krista L. Lentine (https://onlinelibrary.wiley.com/action/doSearch?ContribAuthorRaw=Lentine%2C+Krista+L), Mary Amanda Dew (https://onlinelibrary.wiley.com/action/doSearch?ContribAuthorRaw=Dew%2C+Mary+Amanda), Huiling Xiao (https://onlinelibrary.wiley.com/action/doSearch?ContribAuthorRaw=Xiao%2C+Huiling), Addie Wisniewski (https://onlinelibrary.wiley.com/action/doSearch?ContribAuthorRaw=Wisniewski%2C+Addie), Macey Levan (https://onlinelibrary.wiley.com/action/doSearch?ContribAuthorRaw=Levan%2C+Macey), Fawaz Al Ammary (https://onlinelibrary.wiley.com/action/doSearch?ContribAuthorRaw=al+Ammary%2C+Fawaz), Asif Sharfuddin (https://onlinelibrary.wiley.com/action/doSearch?ContribAuthorRaw=Sharfuddin%2C+Asif), David A. Axelrod (https://onlinelibrary.wiley.com/action/doSearch?ContribAuthorRaw=Axelrod%2C+David+A), Amy D. Waterman (https://onlinelibrary.wiley.com/action/doSearch?ContribAuthorRaw=Waterman%2C+Amy+D), Bertram Kasiske (https://onlinelibrary.wiley.com/action/doSearch?ContribAuthorRaw=Kasiske%2C+Bertram)
Clinical Transplantation
First published: 09 January 2023 https://doi.org/10.1111/ctr.14908 (https://doi.org/10.1111/ctr.14908)
Abstract
The Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective (LDC), the first effort to create a lifetime registry for living donor candidates in the United States, requires transplant centers to register candidates while the SRTR conducts follow-up. To better understand facilitators and barriers to program participation, we conducted a brief electronic survey of U.S. transplant program staff from 10/26/2021–12/17/2021. We received 132 responses, with at least one response from 87 living donor programs (46 kidney programs, 33 kidney and liver programs, and 8 liver programs alone). We found 86% of program representatives strongly agreed or agreed that funding adequate to cover the cost of data collection would facilitate LDC participation, 92% agreed or strongly agreed with importance of electronic data submission options, and 74% reported that elimination of requirements to submit duplicative pre-operative information to the Organ Procurement and Transplantation Network (OPTN) would be helpful. Other potentially enabling factors include reduction in duration of OPTN follow-up requirements, ease-of-use, protection from data use for regulation, adequate data security, and equity in data access. Collaboration and investment to overcome barriers to program LDC participation are vital to generate long-term data on living donation for donor candidates, donors, and patients in need of transplant.