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Living Donation Forum / Inspirational song
« Last post by Fr Pat on April 03, 2020, 07:10:33 AM »
I would just like to share, for those who have not yet heard it, that a very inspirational song/video has been made in northern Italy regarding the COVID-19 disaster there. I find that it also applies very well to all who go through the organ transplant experiences.
You can hear/see it by going to www.youtube.com and searching the title: "Rinascero, rinascerai" by Roby Facchinetti. It is sung in Italian, but has clear English subtitles.
Living Donation Forum / Re: Identical Twins- Liver donor and recipient
« Last post by twin on March 11, 2020, 01:34:08 PM »
Thank you for responding. Great Information!
My best to you and thanks again!
Living Donation Forum / Re: Identical Twins- Liver donor and recipient
« Last post by Fr Pat on March 10, 2020, 07:40:09 PM »
Best wishes and prayers for you both. You might want to post this also at FaceBook at both the Living Donors on Line page and also the Living Donors Support Group. These days more people check in there rather than here, and there are a number of liver-lobe donors there. By the way, when the first living organ donation (kidney) took place in 1954 there were no anti-rejection drugs available as yet, so it could ONLY be done between identical twins! At the Transplant Games in Minneapolis in 2004 I had the pleasure of meeting both that first living donor and the surgeon who did the operation, celebrating the 50th anniversary. Nice.
Living Donation Forum / Identical Twins- Liver donor and recipient
« Last post by twin on March 10, 2020, 06:23:42 PM »
Anyone here a liver donor to their identical twin?
I have had all the tests and find out at the end of this week if I have been accepted.
From Maine, 65 years young
Brother in Mass.
Surgery in Worcester, Ma. at the UMass Memorial Hospital
It's affiliated with UMass Medical School obviously.
Anti-rejection drugs?
Any thoughts about anything to help me appreciated.
We would be their first identical twins.
Living Donation Forum / Re: Over-age
« Last post by twin on March 10, 2020, 06:08:10 PM »
I am 65 and the transplant team is voting on me to be a liver donor.
UMass Memorial Hospital
Worcester, Ma. USA
The recipient is my brother, he is 3 minutes older than me.
My liver is less than 5% fat. 🙂
Living Donation Forum / Re: Over-age
« Last post by Fr Pat on March 03, 2020, 07:18:30 PM »
I myself don't have any helpful information for you on this question, but you might like to post it on FaceBook at both the Living Donors on Line page and on the Living Kidney Donors Support Group page. There are several folks who post there who have donated a liver lobe after having donated a kidney, so perhaps some of them might have good information for you. These days many more donors check in there rather than here.
Living Donation Forum / Over-age
« Last post by ctindongan on March 03, 2020, 02:50:54 PM »

I used to sepnd a lot of time in this forum as I became a non-directed living kidney donor in 2007, but it's been awhile.

I am in excellent health and would like to become a non-directed living liver donor.

I'm 61, though and the cut-off at many transplant centers appears to 55.

I'm in South East Ohio.

If anyone knows of a transplant center that might accept me a s a 61 year-0old donor, I'd really appreciate hearing about it.

Many thanks,

Living Donation Forum / Re: Appealing donation rejection
« Last post by sherri on February 23, 2020, 04:38:13 PM »
I agree with Fr. Pat, please make sure to get a copy of all your testing and a written explanation of why you were not approved to donate. It could have nothing to do with your medical history. maybe there was a positive crossmatch. your anatomy may not be one they felt they could handle if your kidneys have several renal arteries. not sure. but it is strange that they would say you were rejected and not give you a reason.

Depending on what the reason is, if your brother is willing, he can go to another hospital to be treated. Each hospital has their own criteria. it is not like there is a standard across the board as strange as that might be.

Best to find out the whole picture. best of luck and let us know how it goes.

Living Donation Forum / Re: Appealing donation rejection
« Last post by Fr Pat on February 22, 2020, 06:57:22 PM »
I would suggest that you ask them to send you a written explanation of the medical reason)s= and also the results of your tests. That will give you more information to work with.
You might want to post your question at the ¨FaceBook¨pages of Living Donors on Line and also of Living Kidney Donors Support Group, as more people now check in there rather than here.
There is also a FaceBook page for Örgan Transplant Recipients and Living Donors in Canada where you might find some guidance.
Living Donation Forum / Appealing donation rejection
« Last post by Crowseye on February 22, 2020, 06:50:20 PM »
I applied to the USC Berkeley hospital to donate a kidney to my brother, but my application was rejected. The RN I spoke to said it was a medical issue and though they wouldn’t give me details I assume it was because I was diagnosed a few years ago with BPH. I took medication for this for a time, but now my urologist is just doing the wait and see as it is not bothering me too much. I also had back surgery two years ago for a herniated disc that impinged on my spinal cord, leaving me with some nerve damage on my lower body, but this did not directly affect my organs. I wish I had played this down on the application more or not mentioned it at all. I was honest about my medical history because I felt that my BPH was mild enough and even with the past back surgery I was still healthy enough to donate. I live in Canada and my brother lives in California so maybe that played into their decision. I don't know.
What I really want to know is, can you reapply after you are rejected or can you appeal? I can’t see anything on the USCSF website one way or the other and google searches have come up empty. I should have asked the RN but I was kind of in shock on the phone when she told me I was rejected. My assumption is that unless something significant changes in someone’s medical status then the answer would be no.
This is all so hard. Most of the friends he has have not stepped up to donate. Even the two who said they would when we first found out he had end stage kidney disease two years ago have backed off.
Any information about appeals or reapplying would help.
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