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Living Donation Forum / Re: Frustrated
« Last post by 1KidneysEnuff on October 22, 2019, 01:04:17 PM »
Good luck with working on your own health. In the meantime, you and your husband can try to find another living donor. It's becoming more and more common to look online with social media campaigns. I first learned about the need for a kidney donor from an appeal the patient's wife made in an online prayer group. But they had swamped their neighborhood with yard signs, car magnets, etc. in addition to the persistent outreach online.
2
Living Donation Forum / Re: Heart Disease
« Last post by 1KidneysEnuff on October 22, 2019, 01:00:06 PM »
Do you have any limits on exercise with the stents? I don't know enough about stuff like that to give any advice, but I do know that part of the evaluation as a donor is to predict whether your entire system will be able to take the strain of surgery.

Good luck and thank you for trying to be a donor!
3
Living Donation Forum / Re: Frustrated
« Last post by Orchidlady on October 21, 2019, 03:03:37 PM »
I had a similar situation in that I wanted to donate to my husband but I was too heavy. They did part of the testing, but would not do the balance of it until I lost weight. It took me nine months to lose all the weight I needed to lose to be acceptable. I had to start eating better, watched portion sizes and joined a gym for the first time in my life. My blood pressure was not bad, but it did improve with the weight loss as did other numbers.
As Fr Pat has said, you are still relatively young and they don't want the donation to give you major problems on into the future. And actually, high blood pressure is the second leading cause of kidney failure.
You may want to talk with your own physician to see what they say about the blood pressure and weight loss as they may be able to provide some guidance and help.
4
Living Donation Forum / Re: Frustrated
« Last post by Fr Pat on October 21, 2019, 03:36:45 AM »
By the way, these days more people check in at the FaceBook page of Living Donors on Line, and also Living Kidney Donors Support Group on FaceBook. If you would like to post there as well you would probably get more responses and experiences.
5
Living Donation Forum / Re: Frustrated
« Last post by Fr Pat on October 20, 2019, 11:39:36 PM »
     it seems that kidney donors have a higher-than-average risk of developing high blood pressure in the years following donation. So the hospital has to be sure that your blood pressure is good beforehand, or otherwise donation might be too risky for you. They wamt to be as confident as possible that both the donor and the recipient will have good long-term health afterwards.
6
Living Donation Forum / Frustrated
« Last post by jhonyguy04 on October 20, 2019, 09:16:07 PM »
Hello I am new here. Just needed to vent out somewhere about my frustration. My husband has recently progressed to stage 4 CKD and I never had second thoughts about donating my kidney to save him. He didn’t ask I said of course I would do it. I was excited for my evaluation and they told me I have to lose weight and it turns out I have hypertension. I started eating better and lost 10 lbs, but now my weight list has platued. And they told me because I am 33 my hypertension has to be cured. And I am trying my best to cure it with diet and exercise. But I am so depressed about this. I wanted to be ready for my husband to avoid dialysis on him.
7
Living Donation Forum / Re: Heart Disease
« Last post by sherri on October 13, 2019, 11:49:27 AM »
The evaluation is to make sure that you are healthy enough to donate a kidney, your remaining kidney can compensate and that any of your health conditions will not be made worse due to having a lone kidney. I would suggest you have a talk with your cardiologist. There may be medications that you need to take that need that additional kidney function you would be giving away. what happens if you need to have another cardiac catheterization, can you your one kidney handle the nephrotoxic dye. There are some studies that those with one kidney may be more at risk high blood pressure and protein in the urine. These are not issues someone with a heart condition would want to subject themselves to. it would be terrible to create a situation where a donor would go onto need a kidney .It happens but hopefully not due to something that could have been prevented in the evaluation process.

I hope your center does a thorough job in screening for your sake and for the overall kidney donor program. Accepting donors who are at risk jeopardizes everyone. There is more than one way to help a patient in end stage renal failure; donating a kidney is just one. The recipient  and donor needs help with transportation to appointments, maybe monetary loss of wages while they are out with surgery,  help with paying for medications if they have high co pays(recipient), babysitting, errands, cleaning.

Best of luck with your evaluation.

Sherri
8
Living Donation Forum / Re: Heart Disease
« Last post by Fr Pat on October 08, 2019, 08:00:27 PM »
I myself did not have any heart problem. You might want to also post your question at the face-book page of Living Donors on Line as more donors check in there these days.
9
Living Donation Forum / Heart Disease
« Last post by wishusluck on October 08, 2019, 02:02:16 PM »
Hi all - just posted my Health Questionnaire and I'm worried they will refuse me as I have stents in my heart.  Anyone on here with heart disease ?
10
Living Donation Forum / Re: Kidney removal and erectile dysfunction
« Last post by vikinath on October 04, 2019, 08:02:40 AM »
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