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Living Donation Forum / Re: OPTN Public Comment on New Proposals open today through Oct. 2
« Last post by Clark on September 10, 2019, 08:16:50 PM »
I went to the Region 1 meeting yesterday and was TREMENDOUSLY encouraged by the tone and nature of discussions and the supportive votes cast. This is extraordinary progress on the way to continuous national sharing. The only unknown is whether HHS or the courts will allow either half measures or much more time.
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Living Donation Forum / Re: Dancing
« Last post by Fr Pat on September 05, 2019, 07:33:50 AM »
Go for it! I watched the competition at the last Games in Salt Lake City and everybody had a great time. Some couples danced great, bet even those who did not dance quite so well had a blast. The Games are a real "celebration of life" so everybody enjoys the fact that they CAN dance at all!
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Living Donation Forum / Re: Dancing
« Last post by 1KidneysEnuff on September 04, 2019, 08:26:57 PM »
I did ask. It wasn't long before I got my answer.

Thanks for reaching out. So there are three "team joining" options that are available to participants.
1) Join the state team in which they currently reside in.
2) Join the state where you donated in or had your transplant in.
3) Join no team and register as a "non-team affiliate."

The Dancing with the Scars competition entry guidelines are as follows.
-In order to be eligible to compete and medal participants must be either a solid organ recipient, living donor, bone marrow recipient, cornea recipient, tissue donor or a donor family member.
-Partners of the above group can be anyone, a wife, husband, child, sibling, dance instructor, etc. However, they will not be awarded a medal. Only those "officially" eligible can medal. (Those in the first group listed).

Hope this helps.


Maybe I can dance better now that I'm not weighed down by that kidney.  I wonder if I can convince a partner to believe that. :D
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Living Donation Forum / Re: Dancing
« Last post by Fr Pat on September 03, 2019, 07:52:41 AM »
Thanks for catching the typo. I'm not sure of the answer to your question about the dance contest. Perhaps if you locate your nearest State or regional Team you could ask them to clarify it?
     Although the rules can change over the years, I believe that all the team events (basketball, volleyball) require that the whole team be recipients.
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Living Donation Forum / Re: Dancing
« Last post by 1KidneysEnuff on September 02, 2019, 07:51:13 PM »
Father,

There's a typo in that link.  (htlm instead of html)

http://www.transplantgamesofamerica.org/dancing.html

It's not clear whether couples must include a transplant recipient. That seems implied by the notes in the categories that "only one needs to be a recipient."

Do you know if team events usually require a recipient on each team?
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Living Donation Forum / Dancing
« Last post by Fr Pat on August 24, 2019, 10:12:12 PM »
At the Transplant Games held every two years (next Games in new Jersey, Summer 2010) one of the popular events is the Ballroom Dancing competition. Previously the dancers had to be recipients or living donors. But at the next Games "Donor Families" (families whose deceased loved ones donated after death) can also participate. And they have re-named the event "Dancing With The Scars"! They even got permission from the producers of "Dancing With The Stars" to use that variattion of the name without being sued. Info at www.transplantgamesofamerica.org/dancing.htlm
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Living Donation Forum / Re: Expected recovery time for 53 y/o kidney donor?
« Last post by bradmac on August 15, 2019, 04:30:26 PM »
I was 31 when I donated to my brother, but I had to go back to work a week after (my supervisor at that time was NOT understanding).  The desk job made it a little easier, but it was a few weeks before I could button my pants.  ;D
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     I don't remember where I read it, but I recall a study that indicated that living donors' wait time for a transplant from a deceased donor was reduced by over a year on average. BUT the study noted that some living donors do NOT get credited with the extra points simple because their doctor neglected to provide that information when adding that patient to the waiting list. Sorry I don't have the contact information for the study.
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Hi John,

Hope you are well.


The proposed change would also increase priority for pediatric patients and for prior living donors who now need a transplant. Aside from these changes, kidneys will still be matched with patients according to current criteria.


Is there any documentation on how many prior living donors have gone on to need a kidney (since they have been collecting data), how long they waited and outcomes. It has been discussed that  living donors earn an extra 4 points in the allocation system which puts them higher on the list. how does this effect that?

thanks,

sherri
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Living Donation Forum / OPTN Public Comment on New Proposals open today through Oct. 2
« Last post by Clark on August 02, 2019, 04:29:18 PM »
Take a look! Discuss your thoughts and comment strategies here! Of special interest:


Eliminate the use of DSA and Region in kidney allocation policy
https://optn.transplant.hrsa.gov/governance/public-comment/eliminate-the-use-of-dsa-and-region-in-kidney-allocation-policy/


  Example of potential direct effect: "[/size]What priority do you think is appropriate for prior living donor candidates? Should prioritization be applied inside the distribution circle?"
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