Dear Jen,
Best wishes! I recommend you see your primary care physician and ask for a referral for a genetic counselor. This discipline of therapists is new, but rapidly spreading as so many people, like you, are faced with the dilemma of the array of tests now available, with varying reliability, power of prediction, and consequences. While it is unlikely that such a person is also well versed in transplantation, weighing the options is in the nature of what they are trained to help with. My recipient also had/has PKD. Her children were minors when we had our surgeries, and she grappled with the testing decision for both of them. The recent insurance changes in the US change some of the dynamics of this, and it's been more than 10 years, so they're both adults now. They came down on the side of informed relationship and financial planning for testing, an issue for their eldest as she got engaged. Again, best wishes as you decide for yourself what's best for you.