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Author Topic: First follow-up: What should I ask?  (Read 5674 times)

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Offline Eldonna Edwards

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First follow-up: What should I ask?
« on: May 05, 2011, 11:21:00 PM »
I have my first (4 1/2 months post op) follow-up visit and wondering what tests I should request and good questions to ask. I'm guessing creatinine but is there anything else I should ask for in terms of labs?

Thanks in advance for advice!
Author of Lost in Transplantation: Memoir of an Unconventional Organ Donor

Offline Aries7

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Re: First follow-up: What should I ask?
« Reply #1 on: May 06, 2011, 05:37:53 PM »
My Center has me request the following tests:

Serum Creatinine (e-GFR)
Urinalysis
Urine microalbumin
Blood pressure

Best of luck to you at you appointment. Please let us know how it goes.

Linda
Linda
Donated left kidney to Husband
October 8, 2009 at UW Madison

Offline Eldonna Edwards

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Re: First follow-up: What should I ask?
« Reply #2 on: May 10, 2011, 04:33:47 AM »
Thanks for the suggestions, Linda. They only ordered a general blood workup so I'll see that in about a week. No urine tests. Incisions have healed nicely. Blood pressure was really low and I'd lost 16 pounds, or about 4 pounds per month since the surgery. Pretty happy about that.  :)


My Center has me request the following tests:

Serum Creatinine (e-GFR)
Urinalysis
Urine microalbumin
Blood pressure

Best of luck to you at you appointment. Please let us know how it goes.

Linda
Author of Lost in Transplantation: Memoir of an Unconventional Organ Donor

Offline Eldonna Edwards

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Re: First follow-up: What should I ask?
« Reply #3 on: May 12, 2011, 02:41:19 PM »
E-GFR was 55
Creatinine is 1.14 (.9 before surgery)

They didn't do any urinalysis. So, are these numbers good/fair/poor for 4 1/2 months post-op?
Author of Lost in Transplantation: Memoir of an Unconventional Organ Donor

Offline Aries7

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Re: First follow-up: What should I ask?
« Reply #4 on: May 12, 2011, 11:36:57 PM »
Hi Pink!

I am glad to hear that you got your results back. I am not a medical professional, but I can tell you that your results are very similar to mine. The highest my creatinine has been post surgery is 1.2 (this was once when I hadn't had anything to eat or drink since the night before so I was fairly dehydrated.) My new normal otherwise had been 1.1 which also puts my GFR in the lower 50's. (I am now 19 months post OP) I think this is a very normal range for a kidney donor/someone with one kidney. I also believe that it is most important that our numbers stay basically the same - if the creatinine were to begin to creep upward, that would be a concern. My only "concern" would be that they didn't do a urinalysis to check for protein. I am a bit curious why they did not check this - you may want to ask your doctor about that. Otherwise, in my opinion it sounds like you are doing great! I am very glad to hear that your incisions have healed up nicely - and the weight loss - well that is a "side effect" I think most of us would be happy to have! :)

Linda
« Last Edit: May 13, 2011, 12:19:28 AM by Aries7 »
Linda
Donated left kidney to Husband
October 8, 2009 at UW Madison

Offline lawphi

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Re: First follow-up: What should I ask?
« Reply #5 on: May 16, 2011, 07:01:51 PM »
I am 29 and would be happy to have those levels post surgery. 
Bridge Paired Exchange donor on behalf of my husband (re-transplant) at Johns Hopkins.

 

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