Are You a Living Donor with ESRD?

[Michael]

Are you a living kidney donor who now has End Stage Renal Disease (ESRD)? If so, there's a research study in which you might consider participating. Details follow.

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Dear Colleague,
 
A group of nephrologists, transplant surgeons, and clinical researchers at the University of Chicago in collaboration with colleagues at the National Institutes of Health (NIH), are trying to understand why some former living donors develop ESRD. To that end, we are trying to locate former living kidney donors who have developed ESRD. There are at least 320 such individuals.  We want to collect health history and to obtain a blood sample for genetic testing.
 
HOW TO HELP: If you have treated or know of a former living donor now in ESRD, please contact us and we will give you more information about the study and how to help us recruit your patient(s). Even if the patient is deceased, we still want   some basic demographic information for our study so please contact us.
 
You can reach Dr. Lainie Ross by email: Lross@uchicago.edu or by phone 773-702-6323. You can also contact the research assistant, Michael Poulson by email:  mpoulson@uchicago.edu or by phone at 773-834-7545.  We will send you more information and discuss the study in more detail.
 
Sincerely yours,

 
Lainie Ross
On behalf of the ESKD in Living Kidney Donors Study Group at the University of Chicago
 
Lainie Friedman Ross, MD, PhD
Carolyn and Matthew Bucksbaum Professor of Clinical Ethics
Professor, Departments of Pediatrics, Medicine and Surgery
 
J. Richard Thistlethwaite Jr, MD, PhD
Professor, Department of Surgery, Section of Transplantation
 
Yolanda T. Becker, MD, FACS
Professor of Surgery
Director, Kidney and Pancreas Transplant Program
 
Michelle A. Josephson, MD
Professor of Medicine, Section of Nephrology
Medical Director, Kidney and Kidney-Pancreas Transplantation
 
Nicole Stankus, MD, MSc
Associate Professor of Medicine, Section of Nephrology
Medical Director, DaVita Stony Island Dialysis Center
 
Milda Saunders, MD, MPH
Living Donor Advocate, University of Chicago Medical Center
Assistant Professor, Section of Hospital Medicine and MacLean Center for Clinical Medical Ethics