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Author Topic: How long is the wait to donate?  (Read 4110 times)

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Offline Waiting2donate

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How long is the wait to donate?
« on: May 13, 2014, 01:45:53 AM »
Have been approved as a non-directed donor. Has taken 8 months and programs at 2 major transplant centers to get to this point. No idea how long it will take from here, but seems like at least a couple of months more. Am getting "donor fatigue", I just want to get it done and move on. Any idea what a typical time is to find a match? The program has been pretty vague and I can understand that until they find a match they just don't know.

Offline Fr Pat

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Re: How long is the wait to donate?
« Reply #1 on: May 13, 2014, 02:10:39 AM »
     At the time I donated a kidney non-directed 12 years ago only about one third of U.S. transplant hospitals would even receive such candidates. So once one was approved they would match her/him with a patient at THAT hospital. (In my case, that was rapid once my testing was done). Now there are many more hospitals that accept such offers, and often they are linked by computer bases to search for matching recipients among many hospitals. www.kidneyregistry.org has a large data base and tries to match the non-directed donor with a recipient who has a willing but incompatible donor. You donate to that patient, whose incompatible donor then donates to someone else. Again the "someone else" chosen is someone who likewise has a willing but incompatible donor who will pass along a kidney. Thus your donation would set off a "chain" of many otherwise impossible donations. Setting up such a chain can take a little time, as each patient needs to be ready within a limited time span. Since kidneys can now be safely transported from one city to another for transplant, often you need not even have to be in the same State as your recipient.
     I know that this does not answer your question of "how long" very well, but I wanted to pass along the information in case it might be helpful. It might be wise to ask the hospital doing your testing if they will seek a matching recipient only among the patients at that hospital or if they will take part in a wider search.
     Often hospitals are NOT in a hurry with non-directed donor candidates, in order to give them plenty of time to think it over and perhaps back out. So you do have to patiently persevere if you want to donate.
   best wishes,
         Fr. Pat

Offline Waiting2donate

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Re: How long is the wait to donate?
« Reply #2 on: September 18, 2014, 10:13:07 PM »
The answer (for me) is three months. Surgery is in a couple of weeks. They unsuccessfully tried to put some chains together and finally gave up. It's evidently more complex than waiting for an algorithm to spit out a chain. They're going to pick the best match from the top of their list. They don't have a final recipient even this close. It's anonymous, so doesn't really matter to me who or how they pick. Total time start to finish, just over a year. I'm not that patient, so I'm glad to be here. Patience and persistence to anyone just starting.

Offline Yellobelle

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Re: How long is the wait to donate?
« Reply #3 on: September 18, 2014, 10:35:37 PM »
Good luck! Keep us posted!!

 

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