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Living Donation in the News / Re: 2022 AKF Living Donor Protection Report Card
« Last post by Michael on March 30, 2022, 08:23:36 AM »
National Kidney Foundation has also been actively lobbying for national legislation (Living Donor Protection Act of 2021). https://voices.kidney.org/ldpa/

Only 10 months left in this Congress to get it passed. Otherwise, we have to start all over again (as has happened many times before). https://www.congress.gov/bill/117th-congress/house-bill/1255

Woman hikes Mount Kilimanjaro to raise awareness for organ donations

  Not just one, many living donors participated!
Living Donation in the News / 2022 AKF Living Donor Protection Report Card
« Last post by Clark on March 29, 2022, 04:40:05 PM »

2022 AKF Living Donor Protection Report Card

American Kidney Fund grades the states on legal protections for us.
Thanks for the update. I sincerely hope there is a solution and relief for you. I appreciate your willingness to openly share your experience because there are others who have or are going through similar (maybe not identical) issues.

We are here for you as a sounding board, a cheering squad, whatever you need. Please keep us posted on how you progress.

I'm wishing for wellness for you.
Thank you both for your replies and information. Sorry I didn’t come back until now. I was told by my urology surgeon there was no way to know if it was lymph fluid, but he said if it was, there was nothing that could be done about it. He said hydrocele repair isn’t always successful and that for second attempts of repairs, he uses a drain. I had the second hydrocelectomy just over a month ago. I was hopeful for the first week, but soon after I started to get the same swelling I was used to dealing with. I believe a new hydrocele has formed, as large or larger than the last. After a long day at work on my feet or even laying in bed reading can cause even more fluids to build up. I have my follow up with the nurse who works with the surgeon this week.

I have also heard of diets that help with lymph issues, low salt and fat maybe. Now I think I need to visit a lymphedema clinic. I have read recently that they can do a dye test to determine if it is a lymph issue. If I had been told this, I might have had this test done before going through another operation and missing work. I donated my kidney almost 8 years ago now. I’m so grateful my Dad is still alive and doing well with my kidney. No doubt though, my life hasn’t been the same with this issue. I’ll keep looking for ways to deal with this.
Living Donation Forum / Re: Living kidney donor blood type O+
« Last post by Fr Pat on February 05, 2022, 03:32:17 PM »
Since he wishes to donate to someone known and chosen by him he might go through www.matchingdonors.com . There he could read the postings and information from patients looking for a donor and make a choice. However, please also mention to him that if he instead chooses to donate through the National Kidney Registry (www.kidneyregistry.org) they would try to match him with a patient who has a willing but incompatible donor. He would donate to that patient, and then that patient's incompatible donor gives a kidney to someone else. Again the "someone else" chosen by the registry is ANOTHER patient who has a willing but incompatibe donor who then gives a kidney to someone else. And so on down the line. Some of these "chains" result in 10 or 20 otherwise impossible transplants, but ONE non-directed donor (who gives but does not receive) is needed to START the chain. The person who receives his kidney may or may not later get in touch. As donated kidneys can now be safely transported elsewhere for implantation the transplants may take place all over the country over several months. Your friend would thus help a lot of patients get a kidney, rather than just one.
Living Donation Forum / Living kidney donor blood type O+
« Last post by makingAdifference on February 03, 2022, 12:24:53 AM »
Hi. I am writing this for a friend who is old fashioned and not very internet savvy. He wants to donate one of his kidneys to the right person. He is a healthy 49 y/o who doesn't smoke nor drinks. His blood type is O+. He doesn't want to donate to a random person, he'd rather know the recipient before donation. Please message me and I will connect you with him. I am not comfortable sharing his cellphone number publicly here. I wish you all good health.
Living Donation Forum / Re: SearchingforKidneyBloodType"O"donor
« Last post by makingAdifference on February 03, 2022, 12:16:55 AM »
I may be able to help here. One of my friends wants to donate his kidney. He is a healthy 49 y/o. Please send me a private message
Living Donation Forum / Re: Frustrated with the CDC
« Last post by Michael on January 23, 2022, 09:11:05 AM »
This is from Karol Franks, posted in the LDO Facebook group: "Here’s a helpful map for locating Evusheld for high risk organ transplant recipients who have little or no immunity to Covid due to immunosuppressives.We were able to locate it and get a prescription after convincing our doctors that it had been received at their hospitals! Evusheld is a long-acting antibody combination authorized for emergency use in the US for pre-exposure prophylaxis (prevention) of COVID-19"

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