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Author Topic: What's the Facebook group like?  (Read 4328 times)

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Offline JustAPyper

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What's the Facebook group like?
« on: November 04, 2013, 06:52:36 PM »
Just wondering if I'm missing out by not joining that group.

Thanks,
Roger
Paired Exchange Kidney Donor 11/13/2012

Offline Karol

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Re: What's the Facebook group like?
« Reply #1 on: November 05, 2013, 02:18:33 AM »
Some people belong to both, others prefer one or the other.
On LDO's message board you do not have to give your real name, which can be a benefit if you do not want to share your information about becoming a donor. We also moderate these pages. The messages here are organized in a way that you can find topics easily, and you can search for topics or keywords.
On facebook you would be using your name, and that's fine if it is not a problem for people. Users have to abide by facebook rules and guidelines. Each topic thread gets pushed down as newer posts are made, and searching the group for topics is not an option.
Daughter Jenna is 31 years old and was on dialysis.
7/17 She received a kidney from a living donor.
Please email us: kidney4jenna@gmail.com
Facebook for Jenna: https://www.facebook.com/WantedKidneyDonor
~ We are forever grateful to her 1st donor Patrice, who gave her 7 years of health and freedom

Offline Clark

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Re: What's the Facebook group like?
« Reply #2 on: December 11, 2013, 11:34:34 AM »
Another thing to think about is how public your participation is with your real name on Facebook.  Concerns about that have led to our have two groups there:

The older one, with more than 1,000 members, mistakenly changed to "Secret" privacy, is at https://www.facebook.com/groups/LivingDonorsOnline/.

The newer one, likely to be the one you're looking for, with "Closed" privacy, is at https://www.facebook.com/groups/livingorgandonors/.
Unrelated directed kidney donor in 2003, recipient and I both are well.
629 time blood and platelet donor since 1976 and still giving!
Elected to the OPTN/UNOS Boards of Directors & Executive, Kidney Transplantation, and Ad Hoc Public Solicitation of Organ Donors Committees, 2005-2011
Proud grandpa!

 

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