Factors enabling transplant program participation in the living donor collective

[Clark]

https://onlinelibrary.wiley.com/doi/abs/10.1111/ctr.14908

Factors enabling transplant program participation in the scientific registry of transplant recipients (srtr) living donor collective: a national survey


Krista L. Lentine, Mary Amanda Dew, Huiling Xiao, Addie Wisniewski, Macey Levan, Fawaz Al Ammary, Asif Sharfuddin, David A. Axelrod, Amy D. Waterman, Bertram Kasiske

Clinical Transplantation
First published: 09 January 2023 https://doi.org/10.1111/ctr.14908

Abstract
The Scientific Registry of Transplant Recipients (SRTR) Living Donor Collective (LDC), the first effort to create a lifetime registry for living donor candidates in the United States, requires transplant centers to register candidates while the SRTR conducts follow-up. To better understand facilitators and barriers to program participation, we conducted a brief electronic survey of U.S. transplant program staff from 10/26/2021–12/17/2021. We received 132 responses, with at least one response from 87 living donor programs (46 kidney programs, 33 kidney and liver programs, and 8 liver programs alone). We found 86% of program representatives strongly agreed or agreed that funding adequate to cover the cost of data collection would facilitate LDC participation, 92% agreed or strongly agreed with importance of electronic data submission options, and 74% reported that elimination of requirements to submit duplicative pre-operative information to the Organ Procurement and Transplantation Network (OPTN) would be helpful. Other potentially enabling factors include reduction in duration of OPTN follow-up requirements, ease-of-use, protection from data use for regulation, adequate data security, and equity in data access. Collaboration and investment to overcome barriers to program LDC participation are vital to generate long-term data on living donation for donor candidates, donors, and patients in need of transplant.