I agree with you. I'm 14 years post donation (kidney) and most of what I have learned has not come from the transplant doctors but from other sources. So you do have to do your homework. Sometimes just hitting "search" for such topics as "creatinine levels" etc. can lead you to informative articles, but it does take patience. I do strongly suggest two things:
--- keep good records of all the past and present test results. Always ask the doctor for a printed copy to keep (even if you don't understand it all). That way you have something to work with, and you can compare changes that happen over years.
--- If you don't have one, buy a good at-home electronic blood pressure tester. Read and follow the instructions carefully, and take and record your blood pressure at least twice a week, and carefully chart the results. Developing high blood pressure is an increased risk for kidney donors. The test done at the doctor's office is just a one-time reading. Seeing what your blood pressure is over a long period, and whether it is changing, is really valuable information for you and the doctor to have.
best wishes,
Fr. Pat