Woman gained miracle kidney, funding restrictions helped take it away

Started by Clark, July 31, 2011, 06:54:26 PM

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Clark

http://www.vcstar.com/news/2011/jul/22/thousand-oaks-woman-gained-miracle-kidney-helped/

Thousand Oaks woman gained miracle kidney, funding restrictions helped take it away
By Tom Kisken

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Ten years ago, when Castaneda was a junior at Thousand Oaks High School, a kidney given by the family of an unknown donor transplanted her life from fatigue and illness to energy and hope.

"I felt brand new," she said of what seems a distant memory.

That feeling ended when Medicare stopped paying for anti-rejection medicine because of controversial restrictions that too often push people at least three years removed from transplants into a free fall. When the flow of medicine stopped, Castaneda's new kidney shut down like a broken clock.

Castaneda knows nothing about Medicare's regulations or the reasons for them. When her kidney failed in 2006 because she couldn't afford $1,500 a month for immunosuppressives, she was a community college student who worked part-time as a tutor at the Boys & Girls Club of Moorpark.

"It's basically saying they don't care if we have a way to pay for stuff or not," she said. "It meant find your way to pay for your medicine or you're screwed."

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Unrelated directed kidney donor, my recipient and I are well!
659 time blood & platelet donor.
Elected to OPTN Boards of Directors & Executive, Kidney Transplantation, and Ad Hoc Public Solicitation of Organ Donors Committees, 2004-11 & OPTN BoD, Finance, Living Donor, & Patient Affairs Coms 2025-29

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